This year, and for the first time, the anniversary of my father’s death some years ago passed by without me remembering …
It had been a short drive to the nursing home my father had moved to eight days previously. My wife and I had been his primary carers for close to a decade but when, fourteen weeks earlier, he had fallen and broken his hip, his move away from his home and into the healthcare system sparked in him a serious decline. There was also a touch of guilt at the freedoms his move was affording to us.
As we neared the care home, an ambulance on an emergency call passed us. A minute later we drew up behind it and a paramedic vehicle already parked at the home. My wife said to me, ‘It’s for your father.’ I winced; I felt her to be right.
As we strode down the corridor of the second floor suite in which my father had taken residency, a member of staff addressed us: ‘Are you here to see Brian?’
‘Yes,’ we both smiled.
There was already a temporal shift occurring – odd, I thought, no one has addressed us in such a way before. A nurse blocked our path to my father’s room: ‘You’re Brian’s relatives?’ Somehow, in a moment, we were all in her office. My wife looked pale: ‘You’d better sit down Mrs Stafford.’ But there was a dreadful tension and confusion in the space. With my psychotherapist’s hat on I honed in on the emotion – there was huge anxiety being broadcast from this experienced nurse. After a few words she left us saying, ‘I’ll just check on your father’s condition.’ It hit my wife and me at the same moment and we rushed along the corridor.
Bundling into my father’s room we saw a paramedic ‘shouting’ at the prone and half naked figure: ‘Come on Brian … stay with us.’ My father’s chest heaved in physical distress as a bag covered his mouth and another medic prepared to shock him. His skin had the waxy hue and paleness I’d seen on my mother as she passed away.
In the small living space that had become my father’s whole world the paraphernalia of modern emergency support was strewn all around. My wife was first to enunciate her horror: ‘What are you doing this for?!’
For several weeks in three separate medical establishments my father, despite his communication difficulties caused by a stroke some years earlier, had made himself understood – he wanted to die. For the long years before he broke his hip my wife and I had cared for my father, it had been difficult to watch his almost daily decline; he had been a proud, principled and independent man, a teacher and an artist. At eighty, long overdue, he become a published poet. Difficult as it was to watch, we respected that this was a man fading out at his own request. And yet here we were, thrust into the most terrible of moments – a man who wanted to die being forced back into a world he no longer had an interest in. Our protestations that my father be allowed to pass away brought yet more tension into the room. The ‘shouting’ stopped, but our fourteen weeks of frustrations at the NHS care system were too much for me and my wife.
In counterpoint we made our cases aloud to the six medics about respect and civilised treatment. But apparently, my father’s DNR (do not resuscitate) wishes had not been recorded in the requisite manner. Procedure and regulation were in the way of care and welfare, and overrode my father’s desires.
For his entire adult life, my father voted for a system that respected people, treated them well; a welfare state, a national health service, free at the point of need – one of the marks of a civilised and mature society. Those entrusted to administer NHS continuing healthcare had already attempted piracy with his rights and, now, these paramedics were clearly having to apply procedure rather than the human care they so obviously wished to dispense.
My father was being denied his wish to die peacefully and with respect. This was a system seeking to revive him so that it might take him back to a hospital he had already refused to be taken to, in order that he could ‘die’ once more, probably on a trolly in a corridor in A&E.
Before all was lost, the senior paramedic took control and through several different stages and conversations that involved myself and my father’s GP the paramedics were allowed to ‘withdraw’. And then the room was quiet and my father once more calm. His beloved Radio could be heard in the corner of his room and death once more began to claim his body. Peacefully and with us as comforters for his passage he was able to complete his life, with respect and dignity.
Duncan suggests …
… reading the book ‘Staring at the Sun: Overcoming the Terror of Death‘ by Irvine D. Yalom,
All rights reserved © Copyright Duncan E. Stafford 2018. Unauthorized use and/or duplication of this material without express and written permission from the author of this post is strictly prohibited.